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NSGC Digital Ambassador Program

This year NSGC launched a new program to connect a group of individuals in the genetics field who can work together to help raise awareness about the role of genetic counselors and promote their shared interest among their networks. We identified 15 influencers with unique perspectives and knowledge in the fields of genetics and genetic counseling and asked them to become official ambassadors of the profession. Thanks to their enthusiasm, the NSGC Digital Ambassador Program was born.

More information about the 2017 Digital Ambassadors is below. Follow these social media influencers and the #NSGCGenePool hashtag on Twitter to contribute to the conversation on genetics and the genetic counseling profession.

NSGC Digital Ambassadors - Class of 2017
We will update this information as it’s available

Amy Byer Shainman
@BRCAresponder

 

 

Amy Byer Shainman, known as The BRCA Responder, is a passionate advocate for those with BRCA and other hereditary cancer syndromes; providing education, resources, and direct one to one support. In her advocacy efforts, Shainman emphasizes the importance of genetic counseling in the genetic testing equation. Shainman is the executive producer of the award-winning documentary Pink & Blue: Colors of Hereditary Cancer, the creator of #HereditaryCancerNews and the co-creator of #GenCSM - Genetic Cancer Social Media. Her BRCA/hereditary cancer memoir Resurrection Lily will be out at the end of 2017.

 

Bonnie Rochman
@brochman

 

Bonnie Rochman is an award-winning journalist who writes about the intersection of parenting, pediatrics and health. “The Gene Machine: How Genetic Technologies Are Changing the Way We Have Kids — And the Kids We Have” is her first book and was inspired by a cover story she wrote for Time magazine about sequencing children’s genomes. A former health and parenting columnist for Time, she has written for publications including The New York Times Magazine, The Wall Street Journal, Scientific American, and MIT Technology Review. She began her career in Jerusalem for The Boston Globe, writing about Arab-Israeli cooperation vis a vis car theft and ultra-Orthodox fashion models, and covering the death beat at The News & Observer in Raleigh, N.C., where she crafted feature obituaries of ordinary people who had died. She lives in Seattle, which serves as a base from which to explore the peaks of the Pacific Northwest with her husband and three children.

 

Brianne Kirkpatrick
@GCBrianne

 

Colleen Caleshu
@colleencaleshu

 

 

Colleen leads the genetic counseling team at the Stanford Center for Inherited Cardiovascular Disease. As a cardiovascular genetic counselor, she is passionate about helping individuals and families with inherited arrhythmias & cardiomyopathies live well with their genetic disease or risk. Her research interests include improvement of genetic test interpretation, psychological needs of families with inherited heart disease, and integration of genetic counselors into cardiology. 

 

Christina Lizaso
@btrfly12

Christina is a community engagement professional who utilizes her background in nonprofit and volunteer management to empower patients and strengthen the patient voice. She is a CHEK2 previvor whose passion for this work has been driven by her own strong family history of cancer. Christina is the co-founder and co-moderator of the #gyncsm community for gynecologic cancer.

D.A. Wallach
@dawallach

 

Dave Dubin
@AliveAndKicknDD

 

Dee Sparacio
@womenofteal

Dee is an ovarian cancer survivor, research advocate and co-founder of the #gyncsm community for gynecologic cancer. Shortly after her initial diagnosis, Dee met with a genetic counselor to discuss testing. She was tested, and later took part in a precision medicine trial during which her tumor tissue underwent Next Generation Sequencing. She looks forward to highlighting the important role genetic counselors play in a cancer patient's healthcare.

Ellen Matloff
@ MyGeneCounsel

Ellen is a certified genetic counselor and the CEO of My Gene Counsel, a digital genetic counseling company. She served as the Founder and Director of the Yale Cancer Genetic Counseling Program for 18 years, was a plaintiff in the 2013 SCOTUS BRCA gene patent case, and has authored dozens of publications on genetic counseling and testing. 

Georgia Hurst
@ShewithLynch

 

Jeanette McCarthy
@Genomeducator

 

Matt Might
@mattmight

 

Dr. Muin Khoury
@DrKhouryCDC

 

 

Dr. Khoury is the founding director of the CDC’s Office of Public Health Genomics. CDC’s Office of Public Health Genomics serves as the national focus for integrating genomics into public health research and programs for disease prevention and health promotion. Dr. Khoury has developed a number of successful ongoing national and international initiatives to translate advances in genomics and related technologies to recommendations and actions that improve health and prevent disease throughout the life stages. Since 2007, he has also served the National Cancer Institute as senior advisor in public health genomics in the Division of Cancer Control and Population Sciences. Between 2011 and 2015 he led the Epidemiology and Genomics Research Program in the same Division. Learn more about Muin here.

 

Rebekah Moore
@GeneticsRebekah

Rebekah is a certified and licensed genetic counselor who is passionate about empowering individuals at risk for hereditary cancer syndromes. She is an advocate for social media as an avenue for networking, outreach and education. Rebekah has practiced in northern Virginia and northeast Ohio, and is grateful for the opportunity to make a difference for patients in her hometown of Cleveland. 

 

Robert Green, M.D.

 

Scott Weissman
@chicagogenetics

 

 

 

 

Scott is the founder of Chicago Genetic Consultants, LLC, a private genetic counseling practice offering genetic counseling and testing for adult onset disorders.  He also works as a genetic counselor within the Aurora Health Care system focusing on hereditary cancer syndromes.  His primary focus has been hereditary cancer syndromes but also worked with individuals who had hereditary cardiac disease, neurologic conditions as well as a multitude of other adult onset genetic conditions and the burgeoning area of pharmacogenomics. He also has experience with new genetic testing technologies and Next Generation Sequencing from his time with GeneDx, a clinical genetic testing company.  Scott had a faculty appointment as an Instructor of Clinical Medicine at the Feinberg School of Medicine at Northwestern University and is currently a Clinical Faculty member at the Northwestern University Graduate Program in Genetic Counseling. He has been an active member of the National Society of Genetic Counselors (NSGC) where he has worked on a variety of committees and held positions as the Co-Chair of the Familial Cancer Risk Special Interest Group and Liaison to both the Commission on Cancer and the National Accreditation Program of Breast Centers, two programs housed in the American College of Surgeons.